The Joshua Deeth Foundation was set up in memory of our brave son Joshua O’Donnell Deeth who was diagnosed with the rare neurological disorder Pontocerebellar Hypoplasia Type 1.
On the 22nd November 2009 at 14 weeks old he passed away peacefully in his Mummy and Daddy's arms at Ninewells Hospital in Dundee. Having researched the disease we discovered how extremely rare it is and what little information is available to families. This inspired us to setup The Joshua Deeth Foundation to raise awareness and funds for research. Our aim is raise funds for research and to provide support, help and information to other families whose children have been diagnosed with any of the six types of Pontocerebellar Hypoplasia